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p2plogo Care Notebooks

What is a Care Notebook?
The Care Notebook is a simple tool to help parents of children with special needs organize and keep track of information related to their child. The Care Notebook is a three-ring binder with dividers and organizers that will enable parents to have all pertinent information in one location.
a drawing of a notebook

A Care Notebook is:
  • A planning tool
  • Everything in one place
  • Information at your fingertips
  • Portable (take to school meeting, doctors appointments, etc…)
  • Not having to dig through a stack of papers or a box for paperwork
  • Helping you to be a better advocate for your child
  • Personalized to best meet your needs

There are several examples of Care Notebooks (on the Web at http://www.medicalhomeinfo.org/tools/care_notebook.html ) including one developed by the Joshua Project in Vermont. When creating the Parent to Parent of Vermont Care Notebook, the materials we saw from all of these sources inspired us.

Where do you get a Care Notebook?
Parents can purchase the necessary components of a Care Notebook themselves at any office supply store or can contact Parent to Parent of Vermont for a starter Care Notebook packet, which is available at cost** ($8).

Please contact Joanne at Parent to Parent at 1-800-800-4005 ext. 18 for more information or to place your orders.


**Parent to Parent is currently seeking funding for the starter Care Notebook packets, and hopes to
have them available for families at no cost in the near future.
If you would like to donate to this fund, contact Julie at (802) 764-5290 x16

You may download the following insert pages:

Left links are Microsoft Word document icon Word files (you may edit but you may have font problems)  |   Right Links are printable pdf icon - download free Reader pdf files (recommended)
All About Me (2 pages) – Name \ Birthday/age \ Family & pets \ Favorite things \ Upsets me \ Calms me
printable All About Me
Allergies, Meds & Labs (2 pages) charts for: Allergies \ Medications \ Labs \ Nutrition
printable Allergies, Meds & Labs
Baby Story (5 pages) - Room for picture \ Date, weight, length etc \ Birth history \ Milestones
Favorites; food, toys, books, friends \ Feeding history \ Growth & development record
printable Baby Story
Basic Notebook (8 pages) - Name, dob, ssn, blood, allergies, physician \ Family; parent, guardian, emergency contact info, siblings \ Medical/dental; lists \ Therapists; PT, OT, speech, others \ Family support resources \ Personal support contact info \ Professional support resources \ Early Intervention service contacts \ School contacts
printable Basic Notebook
Hospital, Doctors, & Services (4 pages) – Hospitalizations \ Surgeries/procedures \ Physicians \ Support services \ School & community services \ Supplies/Equipment
printable Hospital, Doctors & Services
Illness, Surgery, & Vacs (2 pages) charts for: Illness \ Surgery \ vaccinations
printable Illness, Surgery, & Vacs
Insurance Chart (1 page) - Insurance info chart
printable Insurance Chart
Medical History (Family) (1 page) chart for: Medical histories for family members; illnesses, age of deaths etc.
printable Family Medical History

Questions for the next Dr. visit- have your questions handy along with the answers

Calendar Year at a Glance sheets
for: 2005-2008 (pdf format only)

Word Cover Inserts: colorful frame (the one pictured above)blue/sun/starpink/flower/heart

Another Resource Link: Massachusetts has printed a manual for families whose children have special health needs that provides much valuable information about navigating the health care system, communicating with physicians and insurers, organizing materials, working with early intervention and the public school system as well as a comprehensive chapter on emergency preparedness. Downloads from "Directions for My Child's Care" can be found at: www.mass.gov/dph/fch/directions